Tag Archives: my cancer journey

Energy shifts as coping mechanisms on this cancer journey: A nice lunch and a moment in the sun

Today was a rough day. No particular reason necessarily. Sometimes this cancer journey just gets me down.

My chest is hyper throbby and achy due to injections into the expanders. I guess I was also hoping for and dreading in equal measure learning about my next steps on this cancer journey. Without the oncotype analyses back, we can’t yet make a plan. And, to top it off, I was over our hotel room. Don’t get me wrong. It’s a nice room. But I’ve been in it pretty consistently since I got out of the hospital on May 11. So, to sum it up pain, liminal space, and boredom did a bit of a number on me this morning. I was sad. I was overwhelmed. I was so bored. I didn’t cry, but I could have at any moment.

So, I got up, washed my face, brushed my teeth, and put on makeup. Those rituals always make me feel better. My sweetie took this as an invitation to get me out of hotel jail for a bit after he got off work.

A few days ago he found a nice Mediterranean restaurant D’Vine in the strip mall across the street, so he rolled me over there. (I’m still not allowed to walk much. So excursions either require the car and drop off at the door, or a wheelchair.) We sat outside on the patio on this glorious sunny day, a gentle breeze blowing, and enjoyed falafel, fatayar, fried cauliflower, lamb kabobs, and lentil soup. Everything was so fresh and flavorful and I topped it off with some rice pudding.

Then Andrew rolled me out into the sun to sit for a bit. It was fabulous to feel the sun on my face and the breeze on my skin. Now back home to the hotel for a nap.

It’s amazing how energy shifts, in this case a change of scenery and some yummy food can change my experience of a day. I’m becoming clear that navigating this cancer journey is going to require me to be mindful of when I become overwhelmed and embracing energy shifts (doing something different, going somewhere different) as important coping mechanisms.

On the Importance of Gratitude and Living in the Present on this Cancer Journey

For the last few days, I have focused on living in the moment and gratitude. My wonderful husband helps with that so much.

Several days ago he took me ring shopping because we used a placeholder ring for me when we got married. He found a gorgeous, ruby and diamond ring as well as several other lovely rings. He showed me pictures of them and told me when I was feeling up to it, we could go look at them. When I felt well enough to troll the mall in a wheelchair, he took me to see them and try them on. I fell in love with a ruby and diamond ring, as he knew I would.

That day, I was feeling pretty pessimistic. A gorgeous ring like that seemed to be a portent for the future, and I wasn’t confident in what the future held. I asked him to roll me to a sitting area where we could talk face-to-face and I could tell him my fears. My fears of not living, my fears of debilitation, my fears of treatment, my fears of not being , my fears of losing myself. At that moment, I seemed to have lost my optimistic self. I was embracing a scarcity model and pessimism, two things that do not typically characterize me. Andrew‘s response was “My love, this ring is a symbol of how much I love you, how happy I am that you are my wife, and how happy I am that we are sharing our lives together”. The interesting thing is that as soon as I said the words and heard Andrew‘s reply, the weight of those fears lifted.

Yes! There was no reason for me to be this pessimistic, this fearful. Everything so far had gone my way. Yes I had had a double mastectomy, but they got all the cancer with clean margins, and there was no indication of cancer in my lymph nodes. You can’t really get much better than that following a breast cancer diagnosis. I had decided on breast reconstruction surgery, so that was going to happen as well. I needed to focus on how fortunate I was and try to be as positive as I could.

That does not mean that I’m positive all the time. I’m not. I have cried more in the last month and a half, since the diagnosis, than I’ve cried in my entire life. And as my children will tell you, I’m a crier. When they were little and we saw sad or poignant commercials, TV shows, or movies, they always looked at me to see if I was crying yet. Often I was – or at least I had tears in my eyes.

I think it’s critically important to allow myself to sit in the fear and the sadness that are part of this cancer journey. Normally, I approach those emotions as Chevy Chase did at the Grand Canyon in National Lampoon’s Vacation. I bob my head three times and I’m done. This time, with this journey, it’s not so simple.

That said, gratitude, and focusing on the present really help, at least sometimes.

The other day my sweetie took me to make candles. I love candles and it was a warm, sweet, fun moment and I was fully present.

This morning we went to see the medical oncologist for the first time. I was extremely apprehensive about that visit. I teared up a couple times this morning in anticipation. None of the treatments to prevent cancer from coming back are very much fun and I was afraid. My oncotype analysis is not back yet, so this was really just a preliminary meeting. After meeting with him and with my plastic surgeon, Andrew was pushing me back to the car in the wheelchair when I decided I wanted to grab salads and just sit outside and enjoy the beautiful day. So, that’s what we did. We also did one of our favorite things and played games on Andrew’s phone.

These three examples of being in the present moment have really helped ground me. I know I won’t always be there. I know there is still a lot of fear, uncertainty, and angst ahead of me. I also know how very much I have to be grateful for.

My breast cancer journey: Operating day – double mastectomy – May 8, 2024

I was rolled in for surgery a little before 1:30 in the afternoon on May 8. I handled everything well that morning, having radioactive dye injected into my breast, meeting with Dr Vito, my cancer surgeon, and Dr Lin, my plastic surgeon, having an IV port put in my hand, talking through anesthesia and discussing how I often respond to it with Dr Paik, having my vitals checked, having the contour of my breasts traced with magic marker, keeping a stiff upper lip.

I was focusing on the moment, staying calm, and keeping it together.

Once I was rolled into the operating room, that changed. I was overcome with fear. I felt total terror. I had no control over what was going to happen to my body next. I had no control over what the pathology results were going to be. I wanted to run. Of course there was nowhere to run. I couldn’t run away from the parts of my body that were not functioning in a healthy manner. But I desperately wanted to run.

The OR team was attentive and kind. They saw the shift in my facial expressions. They saw my eyes fill with tears. They looked me in the eyes, stroked my hand, talked to me, and helped me relax a bit. They gave me oxygen and started the anesthesia. I relaxed as the medication took hold and closed my eyes to the sounds of 80s music playing in the operating room.

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